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MFTD Waiver Families

Support for families of children in the Medically Fragile, Technology Dependent Waiver

Transition for Young Adults

The waiver has been amended to allow young adults already in the waiver to remain in the waiver through adulthood. In other words, the waiver is available to all ages as long as a child enters the waiver before age 21. 

Previously, young adults who have been part of the MFTD Waiver were entitled to receive the same level of services after their 21st birthdays under a settlement, Hampe v. Hamos. For more information on the settlement, see the Hampe v. Hamos page from the Department of Healthcare and Family Services.

If a young adult has already reached age 21 and has never been in the MFTD Waiver, he/she unfortunately is not eligible for the MFTD waiver under the amended waiver or this settlement.

Transition Process

Transition begins at about age 18. Families typically work with their care coordinators to determine how the young adult's needs may best be met. Young adults may remain with DSCC to continue receiving services in the model of the MFTD Waiver. They may transition to adult programs, typically the Persons with Disabilities Waiver (operated by Division of Rehabilitation Services [DRS or DORS] and part of the Home Services Program) or the Adults with Developmental Disabilities Waiver.  If a young adult selects one of the adult programs, he/she is bound by the rules of that program. Because only limited hours of home nursing care are available through adult programs, this may lead to a dramatic reduction in private duty nursing care. We suggest remaining with DSCC in the MFTD waiver and not transitioning to an adult program. We have been informed that many families are being encouraged to switch to adult programs with a promise that they will receive more hours of service. These hours, however, are NOT hours provided by a nurse, but hours provided by an unskilled personal attendant. 

Prior to age 18, parents should also seek guardianship of their adult children, if necessary, in order to assist them through the transition process. See this document on guardianship for more assistance.